Doing something good

THANK YOU MALORY--EVERY LIFE HAS A STORY...

The video is beautiful, I cannot thank you enough. For anyone who wants view it is on the lower part of my blog. Make sure to turn off my music player first.

I have been having some good days lately so I have decided to get a team going and walk in honor of Sami for the March of Dimes. I seen it on Holly’s blog and looked into it. Finding ways to do fundraising and getting people together to walk with me has kept my mind pretty busy. I needed this so I am glad I decided to do it. It will also get us ready for the walk on October 15th at the hospital where she was born at. They have a walk in October every year and it ends in the memorial garden they have. I just sent the form in to have her name added to the memorial wall. How I wish I did not know of all this stuff. Before October 15th had no special meaning to me and now boy does it ever. A special day to remember our angel’s who have left us far too soon. I am so sad that I am part of this hush, hush community of the baby loss. I never knew how much pain there was until it rocked my world this past year. I never had a reason to pry into this community. No one wants to be part of it of course, it just happens unfortunately. Now I want to do what ever I can to help others and bring some awareness that there are so many people who changed forever because of infant loss. We have different stories to tell but we are all walking the same painful path. I know I cannot change the world and save every baby or every parent from this pain but if I can help even one mom get through this then I can say I did my part. I am still fresh on this journey but with the help of so many baby loss moms out there I have gotten through some rough days. I know I am not alone. I am not taking any credit away from my family and friends either who have really been there as well. So in case I have not said it in a while THANK YOU to all who have supported me and my honey these past few months. I know that Sami is not here but I am going to do whatever I can to keep her spirit alive and the March of Dimes is one good way.

Valentine’s Day is this weekend and I am not so trilled about it. I wish I had Sami here to kiss and hold and share my unconditional love with her. V day for me is love and family, part of my family is missing so it is going to be a little somber this year. I wonder if that will ever be fun again since I know my heart is always going to be broken. I guess as time passes we shall see. I am sending everyone early Happy Valentine’s Day.

Can't forget that this week is CHD awareness week, fits perfectly since it's Valentine's day (hearts). I Just wanted to share some facts about this.

Sometimes during early pregnancy, a baby's heart fails to form properly, resulting in structural abnormalities known as Congenital Heart Defects. Although some defects are genetic, in many cases the cause is unknown.

CHD is the most frequently occurring birth defect, and is the leading cause of birth-defect related deaths.

Although some babies will be diagnosed at birth, newborns are not routinely screened for CHD. The consequences of a late diagnosis can have serious, lifelong implications, so it is important for the public to be aware of the signs and symptoms in newborns, and children. (Better screening could have probably saved baby Cora--please see her blog, just click on her blog button on the left of my blog).We need to spread the word so no mom ever has to go through what her mom did. Big ((hugs)) to her!

It is estimated that more adults than children are living with congenital heart disease, and this population is expected to grow by 5% each year. Yet, many adults with CHD are not receiving adequate ongoing care from trained specialists.***